The only bright side is that the nurses and Jas can continue to feed him from a bottle, and since they have so much milk there he could have his own fridge, I don't have to worry about them running out. One other thing that helps is that we got new phones with awesome video capabilities. Jas still isn't too sure what he thinks after converting from the iPhone, but now that we figured out the issue we were having with text messaging, I think its growing on him.
We took a few videos the other day and Jas took one of Chase yesterday so I could see him. This definitely helped. That and a little wonton soup:) As soon as I figure out how to get the videos off the phones or he does it for me(expecting that I'll remember all the steps) we'll be in business to upload them.
Updates from the past few days...he never actually made it down to 1.5 L on the nasal cannula. After they wrote the orders he began having issues desatting again and needed to go from 2.0 back up to 2.5 on roughly room air. Yesterday they moved him back down to 2.0 L but increased the O2 just a touch. So far this seems to be the right combination. Time and his growing on a daily basis are what he needs to work on this issue right now. They also did another echocardiogram the other day, but since they send them to Hopkins to be read we still have heard the results yet. No change on meds, feedings are going pretty well (he just has to learn not to gulp) and he gained another 10 grams!
Not sure if I'm going to be able to see him today:( I'm super leery about taking any meds, so I'm going to call my doc this morning. This goes without saying, but I need to catch up on rest. I have no idea how Jas gets up at 3:30 am everyday.
Sorry to hear you arent feeling well :( I will be around all weekend. Let me know if you need anything!
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